COSETTE Sayasane, 2, sits in a hospital bed making shapes out of playdough.
Between them her parents Dolores and Som Sayasane have not left the toddler’s side since she fell sick and was admitted to the Ballarat Base Hospital paediatric ward more than three weeks ago.
Ms Sayasane, who is also a paediatric nurse at the hospital, knows better than most why the community should get behind this Sunday’s Run Ballarat.
The annual fun run raises funds for the Ballarat paediatric ward’s redevelopment by donating 100 per cent of every participant’s fees to the cause.
“It’s to give the best care so the kids can stay in Ballarat,” Ms Sayasane said.
“Being separated from your family is the hardest thing.”
Diagnosed with A-typical HSP, a condition affecting her gut and kidneys, Cosette spends her days in pain or sleeping and is always looking for her mum and dad.
The ward has become a temporary home for the family and even a colourful drawing on the wall declares: “Welcome home”.
Cosette was moved to the Royal Children’s Hospital in Melbourne for a week and when she returned to Ballarat, the nurses had transformed her room into a ‘party room’ complete with streamers and balloons.
Ms Sayasane said the small things made a big difference, such as the big screen television on the wall that helped to kill the boredom and a double bed so parents could sleep next to their child.
“This is home... it’s not like adult nursing, you’re actually nursing the family as well,” she said.
“This is heading into three-and-a-half weeks now ... we don’t know the end. If you’re in Ballarat, you’ve got people to help.”
Last year Run Ballarat raised $167,792 for the children’s ward.
Registrations for this Sunday’s event are now open at runballarat.com.au.