FRIEDREICH’S Ataxia sufferer Wil Hobbs has never met Tom Carra before, but the Melbourne property developer is about to change his life.
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Mr Carra read about Mr Hobbs’ battle in a story in The Courier last week.
Mr Hobbs was rushed to hospital earlier this month after his health took a turn for the worse.
In a matter of days, Mr Carra has organised two corporate fundraising breakfast events to be held in Ballarat and Melbourne both on July 30.
Mr Carra said he was moved by Mr Hobb’s plight and wanted to help him reach his target of $20,000 to receive support for palliative care at home.
At the moment, Mr Hobbs is almost $14,000 short.
"It's simply a way to raise to money for his care," Mr Carra said.
"Wil's story has already generated a lot of attention shown in the number of signatures there are on the online petition supporting him. I worked out the practicalities and hopefully these fundraisers will raise the remaining money he needs.”
Friedreich’s Ataxia is a rare genetic nervous system disorder which affects Mr Hobbs’ movement, sight and speech and causes serious heart problems.
Mr Hobbs, 40, is now legally blind and confined to a wheelchair and also has severe sleep apnoea that requires overnight carers.
The Courier has previously reported on his plight and fight for an increase in government support to provide him with the full-time care he needs to stay in his Ballarat North home.
Creator of the world’s first full-sized working car made from Lego and technology guru Steve Sammartino will be speaking at both events.
The entrepreneur used crowd-funding to build the car and has shared it with more than 5 million people on YouTube. He will be discussing the move from the industrial era to the digital age.
There are 200 tickets available to the Melbourne event and another 100 tickets for sale for the Ballarat event.
The Corporate Fundraiser Brekky for Wil Hobbs will be held on Thursday July 30 at 12pm at Oscar's Hotel and Cafe Bar 18 Doveton Street South, Ballarat. The Melbourne event will be at the Life Saving Victoria Function Centre, 1/200 The Blvd, Port Melbourne from 7.30am. Tickets are $50 each or $450 for a table of ten.
To book tickets visit bit.ly/1CHQKaF.
