Right across Australia a small army of people pounded the footpaths around their home towns to help raise almost $27,000 for research in to a cruel genetic disease.
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The Steps for Skye campaign, to raise funds for research in to Sanfilippo disease which affects about 100 Australian children including Cardigan girl Skye Robson, saw about 40 participants take almost 18 million steps toward meeting their goal of 15,000 steps per day every day in August.
Organiser Teaghan Henderson, who is one of Skye's carers, started the walk last year with about 15 people taking part, raising about $12,800.
She was overwhelmed with the growth in the campaign this year and the money raised for research and awareness in to the condition.
Skye, 11, was diagnosed with Sanfilippo disease when she was five after her family were concerned about what they thought was a developmental delay.
But the diagnosis was far worse: Sanfilippo disease is a terminal degenerative disease, likened to a childhood Alzheimers or dementia, with no treatment or cure.
Because it is such a rare disease there is little research funding available, making fundraising campaigns even more important. Gene therapy is among the most promising avenues currently under research.
Ms Henderson cares for Skye three nights a week and although she did not understand the reason for the extra walking Skye was more than happy to take part.
"She enjoyed doing a lot of steps with me too," Ms Henderson said. "I tried to do 5000 steps before work, 5000 at work and 5000 after work," she said.
"She got pretty tired after days of walking and getting steps in."
In contrast, Ms Henderson's aunt in Port Douglas also took part, sending daily pictures of her beach walks and step count in the warm sunny weather while Ballarat participants braved wet, grey wintry conditions
Donations to the cause also came in from all over the world including Italy, and Thailand.
Ms Henderson said Skye was doing well but her parents and carers have noticed her physical needs increasing.
This winter she's got used to being inside more, but there were plenty of days she could get outside on to her beloved trampoline.
"She has been able to go to school so she's busy at school which is good," Ms Henderson said.
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The family have also extended their home to include an extra room for Skye to be active in.
"It's got a couch, television, exercise balls and is a just a room for her so she can run around and enjoy it - especially the exercise balls which she bounces on all the time. It's good to still see her moving.
"We look at her now and see she's pretty exhausted at the end of the day, whereas before she would never stop now she's sitting on the couch for longer periods of time."
Donations to Steps for Skye are still open here
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